The people listed here would be happy to correspond with you on the topics shown

(Not experts, but these folks have experience (SME) in the topic. As always, consult with a doctor before attempting new treatments)

(Our group's Advisor's are listed at the end below)

Registry of other participants you may contact re: peripheral neuropathy:

Barbara at lvneuropathygroup@gmail.com (Support group leader, Las Vegas, NV)

James at Jlhiggins17@outlook.com (Las Vegas, NV)

Cj at contactingcj@gmail.com(Greensboro, NC )

Barry at boakley@triad.rr.com(Greensboro, NC)

Tom at tomnjoey38@Gmail.com(Support group leader, Dubuque, IA)

Joe at fooetoou2@gmail.com(Dubuque, IA)

Randy at Hindermanr@MSN.com(Dubuque, IA)

Judy at jjason9942@gmail.com

Phil atpclutts@earthlink.net

Arjay at arjay333@gmail.com(Canada, near Toronto)

Jeff at jeffshafton1@hotmail.com(Durham, NC)

Rick at kingtoth@gmail.com(Bandon, OR)

John at mcneilljohn@twc.com(Rochester, NY)

Roy at rwroth@alum.mit.edu (Chapel Hill, NC)

Dee at dede1125@me.com (Atlanta, Ga)

Ron at ronrlocatis@yahoo.com(Kannapolis, NC)

Billie at billieb811@gmail.com(Wellington, Fla)


The Following Are Advisors to this Group and they Welcome Your Comments & Suggestions:

Pamelia atpamelia.jackson@gmail.com (Alabama)*

Deannaatdede1125@me.com

Paul atpaul6ta@yahoo.com(Missouri)*

Linda atlweiner@mindspring.com(Raleigh, NC)*

Joe K. at fooetoou2@gmail.com (Dubuque, IA) *

Phil at pclutts@earthlink.net(Charlotte, NC) *

Barlow at barlowhumphreys@gmail.com(Westchester County, NY)*

Michael Wright at michaeljordanw@me.com

*= Member, Board of Advisors







- Frustratedw/medical professionals? Email Subject Matter Expert Pamelia at: pamelia.jackson@gmail.com


- Want to talk to about Charcot Marie Tooth (CMT)? Our Subject Matter Expert is: elizabetho@outlook.com


- Want to know more about Saving $ on prescription drugs? Our SME is Joe at fooetoou2@gmail.com


- Questions about  Stem Cell Treatments?  Our SME is Lloyd at lloyd.eichorn@yahoo.com


- (hATTR) amyloidosis  mimics peripheral neuropathy - Karen can tell you all about it:  kfuecker@alnylam.com


- For POC stimulators and compressed nerve issues, contact Abigail at abigaildrost@gmail.com

- Interested in legal Medical Marijuana? Paul would be happy to exchange emails: paul6ta@yahoo.com


- Water aerobics can be beneficial! Barry knows all about it:  boakley@triad.rr.com


- Is your P-N the result of Chemotherapy? Dwan will be happy to email with you: dwantobias@icloud.com


- Are Balance Issues a concern? Tom has been dealing with that & you can email him at: tomnjoey38@gmail.com


- Hand Controls for your car? Email Phil who had them installed: pclutts@earthlink.net  Writes Phil...

"I found a hands control installer willing to do the job without my having to take an expensive driver rehabilitation certification course. Learning on my own was intimidating at age 77, but I took it slow and regained my lost independence."


- Applying for disability?  Celena has been through it:  celenathomas10@gmail.com


- Are you interested in MBSR (Mindfulness Bases Stress Reduction? Ken has experience with this & is happy to answer your questions: kenseibert@icloud.com


- Can essential oils reverse P-N? Joe has had some luck with thisfooetoou2@gmail.com


-- Can spinal cord stimulationwork with P-N? Michael is under using this! michaeljordanw@me.com


- Interested in Calmare (aka Scrambler) therapy? Email Ron at: ronrlocatis@yahoo.com and/or Joe K. at fooetoou2@gmail.com 


- Are you considering IVIG treatments? Scott will be happy to discuss the process: scottgates1995@yahoo.com


-Wrestling with autonomic peripheral neuropathy? You are welcome to email Craig at armyvet84@outlook.com


-Want to know more aboutEssential Tremors?Email Barlow at barlowhumphreys@gmail.com


-Ever consideredPower Plate Exercises? Email Don at dwkerker@gmail.com 


-Interested inTai Chi? You are welcome to email Barlow atbarlowhumphreys@gmail.com  Writes Barlow...

"Tai chi is certainly no panacea or silver bullet for Peripheral Neuropathy, however, with dedication, patience and perseverance, it will assist individuals in gaining an increased awareness of one’s own body and sense of balance."