And here are past selections from our library of featured member writers. If you would like to have any of these, email me at contactingcj@gmail.com:

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-Gene Richardson's "Symptoms of Peripheral Neuropathy"

-Shirley Lynn's "Book of Peripheral Neuropathy & More"

-Barlow Humphries "Balance Issues and what to do about it"

-Paul Sixta's "History of Marijuana" (and why it has been stifled by the government).

-Joe Korzelik's "Results of one person's experimentation with Essential Oils
for relief from Peripheral Neuropathy symptoms"

-John McNeil's "Neuropathy From Drugs"

-The Foundation for Peripheral Neuropathy's (FPN) Nancy Frohman's "How the FPN helps sufferers of P-N"

-Follow Phil Clutts through four short, but really interesting, chapters on his "adventures" with getting set up with hand controls for cars!

-Joe Korzelik on "Scrambler Therapy"

-Joe Korzelik on "How to lower prescription drug costs"

-Dr. Ahmet Hoke on "Nerve-related supplements"

-Arjay's notes on comparing "Fibromyalgia to Peripheral Neuropathy"

-Ron Lucatis discusses his personal experiences with "Calmare Treatments"

-Barlowe Humphries on "Tai Chi Chuan"

-Dr. Donovan's detailed notes on the"Physiology of Peripheral Neuropathy"

-Pamelia tells us how best to interact with medical professionals



I thought I’d bring you up to date on my trial Spinal Cord Stimulation implant surgery in Toronto on July 5, 2019.

The Hospital implanted a lead (connecting wire) into my spine which connected to an External Stimulator taped to my hip, controlled by a remote control.  The Stimulator generates pain-masking electrical impulses (not too dissimilar from a TENS machine sensation).  After 4 days they took an X-ray of my spine, cleaned everything up and reprogrammed the Stimulator based on my feedback as adjustments were made by remote to the Stimulator. After 4 more days they assessed it again and made further changes to the Stimulator.

The hardest part which they didn’t prepare me for was the level of pain where the lead was inserted into my spine when I leaned against anything or lay on my back.  My movements were quite restricted and I couldn’t bathe or shower for 12 days so it was sponge bath time – woo hoo!! We had to watch to make sure there was no infection. It was interesting to feel the tingling in my leg from the stimulator which changed every time I moved positions or adjusted the remote control.

On the 4th and final visit I had the lead removed and a decision was made whether the implant was enough of a success to have a permanent Spinal Cord Stimulator implanted about a month later. Unfortunately, I’m sorry to tell you that it was not a success.  They look for a 50-70% improvement in pain levels and my reduction was only 15% at best.  Also, one year after a permanent implant, the effectiveness is reduced by about 20%.

Of course, everyone is different and they said they normally have about a 50% success rate, although they didn’t have any specific stats for patients who were suffering from Peripheral Neuropathy.

So, I’ve run out of ideas. The Hospital will notify me if they come up with anything new in the future which may help.

I contacted Paul to pick his brains on vaping cannabis since he seems to have had a high level of success (no pun intended) in alleviating his pain.  Last year I tried cannabis oil under the tongue which didn’t help but I haven’t tried vaping.  Since then, I went back to the company I used last year for cannabis oil and they didn’t recommend vaping, saying if sub-lingual cannabis didn’t work for me, neither would vaping.

Well, I think I've tried everything – you have to give me “A” for effort.

All the best,

Arjay

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  Arjay Relates Her Experiences With a Spinal Stimulation Implant